Analysis of the concept of family-centered care in chronic diseases: Rodgers’s evolutionary approach
DOI:
https://doi.org/10.22122/cdj.v5i1.232Keywords:
Proof of Concept Study, Concept Formation, Family-Centered Nursing, Chronic IllnessAbstract
BACKGROUND: Considering the fact that hospitalization of a family member in the intensive care unit (ICU) can have a great impact on different aspects of the life of the patient’s family, the purpose of this study was to clarify the concept of family-centered care with chronic diseases admitted to ICU.
METHODS: In this study, Rodgers’ evolutionary concept approach was used to analyze the concept of family-centered care for chronic patients. Criteria for entering articles, books and scientific information in English and Persian from 1980 to 2016 on family-based care and chronic diseases were selected using scientific databases.
RESULTS: Family-based care in chronic diseases is a concept that process nature with care management, education and interaction. Also, three types of forerunners here include family-related predictions (family efficiency), self-confidence (system-related), adequate resources, social factors and cultural factors (related to care providers), participation (in this case).
CONCLUSION: The concept of family-centered care has evolved over the past few years in relation to chronic diseases. Nurses have significantly improved their knowledge of family care mainly focusing on improving the families of patients. Therefore, the nurses in the care groups have been significantly influenced and have been able to assume the responsibility of family-based care groups.
References
Azoulay E, Pochard F, Chevret S, Lemaire F, Mokhtari M, Le Gall JR, et al. Meeting the needs of intensive care unit patient families: A multicenter study. Am J Respir Crit Care Med 2001; 163(1): 135-9.
Maruiti MR, Galdeano LE, Dias Farah OG. Anxiety and depressions in relatives of patients admitted in intensive care units. Acta Paul Enferm 2008; 21(4): 636-42.
Wasser T, Pasquale MA, Matchett SC, Bryan Y, Pasquale M. Establishing reliability and validity of the critical care family satisfaction survey. Crit Care Med 2001; 29(1): 192-6.
McAdam JL, Puntillo K. Symptoms experienced by family members of patients in intensive care units. Am J Crit Care 2009; 18(3): 200-9.
Eshah N, Ahmad H. The pyschological burden of a relative’s CICU admission. British Journal of Cardiac Nursing 2015; 10(4): 1-7.
Ēiftēi H, Öztunē G. the effect of music on comfort, anxiety and pain in the intensive care unit: A case in Turkey. International Journal of Caring Sciences 2015; 8(3): 594-602.
Wigert H, Hellstrom AL, Berg M. Conditions for parents’ participation in the care of their child in neonatal intensive care - a field study. BMC Pediatr 2008; 8: 3.
Sarhadi M, Harandy TF, Keykhaei A, Navidian A. Assessment of psycho-social needs of the family members of the patients hospitalized in ICU and CCU. J Crit Care Nurs 2013; 6(4): e7025.
Sheaffer H. The Met and Unmet Needs of Families of Patients in the ICU and Implications for Social Work Practice [PhD Thesis]. Philadelphia, PA: University of Pennsylvania; 2010.
Bailey JJ, Sabbagh M, Loiselle CG, Boileau J, McVey L. Supporting families in the ICU: A descriptive correlational study of informational support, anxiety, and satisfaction with care. Intensive Crit Care Nurs 2010; 26(2): 114-22.
Nouhi E, Karbalaizadeh M, Abazari F. The effect of mothers’ participation and the family-centered care on mother’s anxiety with children suffering from gastrointestinal infections: A randomized clinical trial. J Clin Nurs Midwifery 2015; 3(4): 47-55.
Kuo DZ, Houtrow AJ, Arango P, Kuhlthau KA, Simmons JM, Neff JM. Family-centered care: Current applications and future directions in pediatric health care. Matern Child Health J 2012; 16(2): 297-305.
Azoulay E, Chaize M, Kentish-Barnes N. Involvement of ICU families in decisions: Fine-tuning the partnership. Ann Intensive Care 2014; 4: 37.
Duran CR, Oman KS, Abel JJ, Koziel VM, Szymanski D. Attitudes toward and beliefs about family presence: A survey of healthcare providers, patients’ families, and patients. Am J Crit Care 2007; 16(3): 270-9.
Hashim F, Hussin R. Family needs of patient admitted to intensive care unit in a public hospital. Procedia Soc Behav Sci 2012; 36: 103-11.
Davidson JE. Family-centered care: Meeting the needs of patients’ families and helping families adapt to critical illness. Crit Care Nurse 2009; 29(3): 28-34.
Henneman EA, Cardin S. Family-centered critical care: A practical approach to making it happen. Crit Care Nurse 2002; 22(6): 12-9.
Pelazza BB, Marques Simoni RC, Batista Freitas EG, da Silva BR, da Silva M. Nursing visit and doubts expressed by families in the intensive care unit. Acta Paul Enferm 2015; 28(1): 60-5.
Ghaderi S, Alaee Karahrudi F, Iusefi Chaijan P, Nasiri Oscui N. Fathers participation in the care of hospitalized child in pediatric intensive care unit on fathers? stress and coping strategies. J Arak Univ Med Sci 2013; 16(10): 61-9. [In Persian].
Shamloo J. How Caring Attitudes and Patient-Family Centered Care Beliefs of Critical Care Registered Nurses Influence Family Members’ Perceptions of Patient Family Centered Care [PhD Thesis]. Kennesaw, GA: Kennesaw State University; 2012. [In Persian].
Hoseini Azizi T, Hasanzadeh F, Ehsaee MR, Esmaily H, Khoshbakht S. The Impact of Patient’s Families Supportive Presence on the Attitudes of Intensive Care Unit Nurses in this Unit. J Rafsanjan Univ Med Sci 2013; 12(9): 719-32.
Rabie Siahkali S, Mohamadi K, Paryad E, Roushan A. Family and anxiety in intensive care units. Holist Nurs Midwifery 2008; 17(58): 1-8. [In Persian].
da Silva Ramos FJ, Fumis RR, Azevedo LC, Schettino G. Perceptions of an open visitation policy by intensive care unit workers. Ann Intensive Care 2013; 3(1): 34.
Kohi TW, Obogo MW, Mselle LT. Perceived needs and level of satisfaction with care by family members of critically ill patients at Muhimbili National hospital intensive care units, Tanzania. BMC Nurs 2016; 15: 18.
Ramezani T, Hadian Shirazi Z, Sabet SR, Moattari M. Family-centered care in neonatal intensive care unit: A concept analysis. Int J Community Based Nurs Midwifery 2014; 2(4): 268-78.
Cooper LG, Gooding JS, Gallagher J, Sternesky L, Ledsky R, Berns SD. Impact of a family-centered care initiative on NICU care, staff and families. J Perinatol 2007; 27(Suppl 2): S32-S37.
Melo EM, Ferreira PL, Lima RA, Mello DF. The involvement of parents in the healthcare provided to hospitalzed children. Rev Lat Am Enfermagem 2014; 22(3): 432-9.
Rodgers BL, Knafl KA. Concept development in nursing: Foundations, techniques, and applications. Philadelphia, PA: Saunders; 2000.
Chinn PL, Kramer MK. Theory and nursing: Integrated knowledge development. Philadelphia, PA: Mosby; 1999.
