A qualitative investigation into the lived experiences of patients with type 2 diabetes mellitus
DOI:
https://doi.org/10.22122/cdj.v8i2.514Keywords:
Type 2 Diabetes Mellitus, Qualitative Evaluation, Lived Experience, Van Manen’s Hermeneutic Phenomenological MethodAbstract
BACKGROUND: Type 2 diabetes mellitus (T2DM) is a chronic disease which afflicts a large number of people all over the world and causes numerous complications to the patients and decreases the quality of their lives. The present study was carried out in order to investigate the lived experiences of patients with T2DM.
METHODS: The present study was carried out by a qualitative method. To collect the required data, in-depth semi-structured interviews were carried out with 10 patients with T2DM who referred to Bli Hospital in Mergasour District, the Kurdistan Region of Iraq, in 2018. The interviews were transcribed and analyzed using Van Manen’s (1990) hermeneutic phenomenological method, and the themes were retrieved.
RESULTS: Based on the results of analyzing the interviews, it was seen that the patients referred to DM as a disease that cannot be treated, which was labelled as “incurable disease”. They also referred to the fact that DM had made their life very hard, which was labelled as “difficult life”. Moreover, they stated that DM was a silent killer, which was labelled as “silent disease”. Finally, they referred to taking insulin shot as addictive, which was referred to as “problem with taking insulin”.
CONCLUSION: According to the results, the patients’ lived experiences were interpreted as incurable disease, difficult life, and silent disease, which requires social and individual support to be tackled. Moreover, alternative medicines should be figured out because insulin injection was referred to as addictive. The results of the present study can be utilized by clinical trials focusing on treating and helping patients with T2DM and enhancing the quality of their lives.
References
World Health Organization. Diabetes [Online]. [cited 2018]; Available from: URL:
https://www.who.int/en/news-room/fact-sheets/detail/diabetes
American Diabetes Association. Diagnosis and classification of diabetes mellitus. Diabetes Care 2009; 32(Suppl 1): S62-S67.
Isarankura-Na-Ayudhya C, Nantasenamat C, Dansethakul P, Saetum P, Laosrivijit S, Prachayasittikul V. Solving the barriers to diabetes education through the use of multimedia. Nurs Health Sci 2010; 12(1): 58-66.
International Diabetes Federation. IDF Diabetes Atlas. 6th ed. Brussels, Belgium: IDF; 2013.
Diabetes UK. SYMPTOMSType 2 Diabetes Symptoms [Online]. [cited 2013]; Available from: URL:
http://www.diabetes.co.uk/type2-diabetes-symptoms.html
Vorum H, Ditzel J. Disturbance of inorganic phosphate metabolism in diabetes mellitus: Its relevance to the pathogenesis of diabetic retinopathy. J Ophthalmol 2014; 2014: 135287.
Bradshaw Kaiser A, Zhang N, Van Der Pluijm W. Global prevalence of type 2 diabetes over the next ten years (2018-2028). Diabetes 2018; 67(Suppl 1): 202-LB.
The International Diabetes Federation (IDF). IDF MENA Members [Online]. [cited 2017]; Available from: URL:
https://www.idf.org/our-network/regions-members/middle-east-and-north-africa/members/36-iraq.html
Evans JM, Newton RW, Ruta DA, MacDonald TM, Morris AD. Socio-economic status, obesity and prevalence of Type 1 and Type 2 diabetes mellitus. Diabet Med 2000; 17(6): 478-80.
Gillies CL, Abrams KR, Lambert PC, Cooper NJ, Sutton AJ, Hsu RT, et al. Pharmacological and lifestyle interventions to prevent or delay type 2 diabetes in people with impaired glucose tolerance: Systematic review and meta-analysis. BMJ 2007; 334(7588): 299.
Holt RI, de Groot M, Golden SH. Diabetes and depression. Curr Diab Rep 2014; 14(6): 491.
Hanlan ME, Griffith J, Patel N, Jaser SS. Eating disorders and disordered eating in type 1 diabetes: Prevalence, screening, and treatment options. Curr Diab Rep 2013.
Robinson DJ, Luthra M, Vallis M. Diabetes and mental health. Can J Diabetes 2013; 37(Suppl 1): S87-S92.
Vinik AI, Park TS, Stansberry KB, Pittenger GL. Diabetic neuropathies. Diabetologia 2000; 43(8): 957-73.
Trikkalinou A, Papazafiropoulou AK, Melidonis A. Type 2 diabetes and quality of life. World J Diabetes 2017; 8(4): 120-9.
Wu Y, Ding Y, Tanaka Y, Zhang W. Risk factors contributing to type 2 diabetes and recent advances in the treatment and prevention. Int J Med Sci 2014; 11(11): 1185-200.
Bachmann MO, Eachus J, Hopper CD, Davey SG, Propper C, Pearson NJ, et al. Socio-economic inequalities in diabetes complications, control, attitudes and health service use: a cross-sectional study. Diabet Med 2003; 20(11): 921-9.
Garcia-Perez LE, Alvarez M, Dilla T, Gil-Guillen V, Orozco-Beltran D. Adherence to therapies in patients with type 2 diabetes. Diabetes Ther 2013; 4(2): 175-94.
Marin-Penalver JJ, Martin-Timon I, Sevillano-Collantes C, Del Canizo-Gomez FJ. Update on the treatment of type 2 diabetes mellitus. World J Diabetes 2016; 7(17): 354-95.
Mosadeghrad AM. Factors affecting medical service quality. Iran J Public Health 2014; 43(2): 210-20.
Vahdat S, Hamzehgardeshi L, Hessam S, Hamzehgardeshi Z. Patient involvement in health care decision making: A review. Iran Red Crescent Med J 2014; 16(1): e12454.
Van Manen M. Researching lived experience: Human science for an action sensitive pedagogy. Albany, NY: SUNY Press; 1990.
Holloway I, Wheeler S. Qualitative research in nursing and healthcare. Hoboken, NJ: John Wiley & Sons; 2010.
Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs 2008; 62(1): 107-15.
Lai WA, Chie WC, Lew-Ting CY. How diabetic patients' ideas of illness course affect non-adherent behaviour: A qualitative study. Br J Gen Pract 2007; 57(537): 296-302.
Natarajan JR. Diabetic compliance: A qualitative study from the patient's perspective in developing countries. IOSR Journal of Nursing and Health Science 2013; 1(4): 29-38.
Selman L, Higginson IJ, Agupio G, Dinat N, Downing J, Gwyther L, et al. Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: Multicentre qualitative study. BMJ 2009; 338: b1326.
Abazari P, Doosti Irani M, Babaee S, Shahgholian N. Can I do…? Life with type II diabetes: A phenomenological study. Iran J Nurs Midwifery Res 2008; 13(2): 94-9.
Ahlin K, Billhult A. Lifestyle changes-a continuous, inner struggle for women with type 2 diabetes: A qualitative study. Scand J Prim Health Care 2012; 30(1): 41-7.
Svedbo Engstrom M, Leksell J, Johansson UB, Gudbjornsdottir S. What is important for you? A qualitative interview study of living with diabetes and experiences of diabetes care to establish a basis for a tailored Patient-Reported Outcome Measure for the Swedish National Diabetes Register. BMJ Open 2016; 6(3): e010249.
Carolan M, Holman J, Ferrari M. Experiences of diabetes self-management: A focus group study among Australians with type 2 diabetes. J Clin Nurs 2015; 24(7-8): 1011-23.
Abdoli S, Mardanian L, Mirzaei M. How public perceive diabetes: A qualitative study. Iran J Nurs Midwifery Res 2012; 17(5): 370-4.
DiZazzo-Miller R, Pociask FD, Bertran EA, Fritz HA, Abbas M, Tarakji S, et al. Diabetes is devastating, and insulin is a death sentence: Provider perspectives of diabetes self-management in Arab-American patients. Clin Diabetes 2017; 35(1): 43-50.
Jenkins N, Hallowell N, Farmer AJ, Holman RR, Lawton J. Participants' experiences of intensifying insulin therapy during the Treating to Target in Type 2 Diabetes (4-T) trial: Qualitative interview study. Diabet Med 2011; 28(5): 543-8.
Abu Hassan H, Tohid H, Mohd Amin R, Long Bidin MB, Muthupalaniappen L, Omar K. Factors influencing insulin acceptance among type 2 diabetes mellitus patients in a primary care clinic: a qualitative exploration. BMC Fam Pract 2013; 14: 164.
Janes R, Titchener J, Pere J, Pere R, Senior J. Understanding barriers to glycaemic control from the patient's perspective. J Prim Health Care 2013; 5(2): 114-22.
Guimaraes C, Marra CA, Gill S, Meneilly G, Simpson S, Godoy AL, et al. Exploring patients' perceptions for insulin therapy in type 2 diabetes: A Brazilian and Canadian qualitative study. Patient Prefer Adherence 2010; 4: 171-9.
